Company Overview: Founded in 2008.

We are a 501(C)(3) non-profit association founded by parents of Cohen Syndrome children. We are a 100% volunteer organization that is dedicated to spreading the word and helping other families that are on this journey.

Mission: To raise awareness for earlier diagnosis of Cohen Syndrome.

We A.R.E. Cohen Syndrome

We Advocate, Research & Educate families

And professionals about Cohen Syndrome

Cohen Syndrome Association® 2023