2020 Cohen Syndrome Conference Registration

Dates: June 11th – June 13th 2020

Our community has been growing and what started with a few families gathering in 2004 has become an International Conference. Families from around the globe travel to attend this event to meet with experts and other Cohen Syndrome families. This experience is life changing for families and has made a positive impact for CS with research and advocacy.

Location : Embassy Suites by Hilton Cleveland Rockside

5800 Rockside Woods Boulevard
Independence, Ohio 44131

What to expect

The DDC Center for Special Needs Children and other medical experts will present valuable information to families and friends of Cohen Syndrome.

Meet other families of Cohen Syndrome children for some great activities and sharing ideas about raising our wonderful children. Expect to have a fabulous time that is life changing. This conference only happens every two years so don’t miss out.

Corporate Kids Events will be providing childcare on Friday and Saturday during the conference sessions ( 9:00 AM to 5:00 PM). We are excited to have professional childcare to ensure our kids have a enjoyable experience. The cost for childcare is part of the registration fee’s and subsidized by donations to the CSA. We will have 2 separate childcare venues so that we can offer more diverse options from a less active room to a more active room.

The conference starts from Thursday June 11th with check in and registration and optional family meet ups and ends on Saturday June 13th 2020. We are excited to have our conference at The Embassy Suites by Hilton Cleveland-Rockside, Ohio. This new location offers free shuttle service from the airport and has the space needed as we continue to expand. Lodging includes breakfast and other amenities and other meals are included in the conference cost.


Thursday June 11th

Registration will be open from 12 PM

Family Activities and meet ups: Please indicate if you are interested in meeting up on your registration form

Cleveland Zoo Tickets from $12.95 and up

Rock and Roll Hall of Fame Tickets from $16 and up

Medical Visit at DDC Clinic : please contact the clinic directly if you wish to schedule a consultation


5:00 PM– 9:00 PM Family reception dinner and opening of event

Friday June 12th

9:00 AM – 5 PM Meetings

Lunch 12:00 PM -1:00 PM

5:00 PM- 10 PM Dinner and family time.

Saturday June 13th 

9:00 A.M -5:00 PM Meetings

Lunch 12:00 PM-1:00 PM

5:00 PM – 10 PM Dinner and event conclusion

Complete Registration form here

Registration Fee’s :

Cost of event is $250.00 per adult ( age 10 and up) and $225.00 per child. Children under the age of 12 months are free. Meals will be buffet style and include non-alcoholic beverages and dessert. Cost of fees include lunch, dinner and childcare costs.


Lodging We have a special room rate of $139 per night plus taxes and fees. Please visit the link for reservations at Embassy Suites Rockside CS Rate

We are looking forward to seeing both old friends and new

We hope to see you in Ohio !

Lisa McElhinney
Cohen Syndrome Association