2018 Conference Registration


Our Registration deadline ended June 1st  and we are looking forward to seeing everyone in Ohio !

Our community has been growing and what started with a few families gathering in 2004 is now an International Conference. Families from all over the globe will travel to attend this event to meet with experts and other Cohen Syndrome families.

What to expect

The DDC Center for Special Needs Children and other medical experts will present valuable information to families and friends of Cohen Syndrome.

Meet other families of Cohen Syndrome children for some great activities and sharing ideas about raising our wonderful children. Expect to have a fabulous time that is life changing. This conference only happens every two years so don’t miss out.

Childcare will be provided during conference day hours and the room will be adjacent to the meeting room. This years theme will be Carnival and will include fun games for the kids. Parents will be welcome to have children in the meeting rooms during the conference.

The conference will be from June 21st to June 23rd 2018 at The Embassy Suites in Beachwood, Ohio. This new location will allow the space needed as we continue to expand. Lodging includes breakfast and other meals are included in the conference cost.


Thursday June 21st

Afternoon check in at Embassy Suites for arriving families.

5:00 PM– 9:00 PM Reception and Dinner

Pizza buffet dinner and cash bar

Friday June 22nd

9:00AM – 4 PM Meetings

Lunch included

5:00 PM- 10 PM Dinner and family time.

Dinner buffet and cash bar

Saturday June 23rd 

9:00 AM -2:00PM Meetings and event conclusion

Lunch included


* Cost of event is $175.00 per adult ( age 13 and up) and $125.00 per child. Children under the age of 12 months are free. Meals will be buffet style and include non-alcoholic beverages and dessert. A cash bar will be available during dinner.

  • No refunds will be issued after June 1st 


We have a group rate of $119.00 per night plus tax so book via  our group website at  Embassy Suites Beachwood  

We are looking forward to seeing both old friends and new

We hope to see you in Ohio !

Lisa McElhinney
Cohen Syndrome Association